Andrews Firefly Fund
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WebsiteAbout this service
Firefly Fund is a nonprofit organization founded in 2017 that provides support for research and education to accelerate cures for rare neurodegenerative genetic diseases affecting children with no current cure. The organization focuses on helping families navigate the diagnostic odyssey and advancing treatments for conditions like Niemann-Pick Disease Type C. Services: Early Diagnosis; Research; Access.
Who it is for
children with rare neurodegenerative genetic diseases
- Languages:
- English
Where to go
Main
PO BOX 92616, Austin, TX, 78709
County not confirmed
Hours
Hours are not listed. Check the website or visit in person.
Contact
- Website:
- https://fireflyfund.org/
- Email:
- info@fireflyfund.org
- Facebook:
- https://www.facebook.com/FireflyFund
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