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Ptls Hope Research Foundation

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About this service

PTLS HOPE RESEARCH FOUNDATION funds research for Potocki Lupski Syndrome to develop treatments and raise awareness. They focus on improving lives for children and families affected by this rare genetic disorder. Services: funding groundbreaking drug discovery research; promoting scientific research for Potocki Lupski Syndrome; advocacy for PTLS; research into potential treatments.

Who it is for

children with PTLS; families affected by PTLS

Languages:
English

Where to go

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Contact

Website:
https://www.ptlshope.org/

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