Skip to content
KinshareEspañol

← Back to search

Setbp1 Society

Not yet confirmed by the organizationIs this your organization? Claim it at no charge

Call before you go: hours and services may have changed.

About this service

SETBP1 Society supports over 220 families impacted by SETBP1 haploinsufficiency disorder and related disorders. The organization provides resources including education guides, community surveys, and research opportunities for affected families. Services: Family support; Research funding; Education guides; Community surveys; Conferences.

Who it is for

Families impacted by SETBP1 haploinsufficiency disorder (SETBP1-HD) and related disorders

Languages:
English

Where to go

Loading the map…

© OpenStreetMap contributors

Contact

Phone:
512-522-8072
Website:
https://setbp1.org/

Kinshare lists services as reported; it does not guarantee availability, eligibility or outcome.

Report a problem with this listing