Gorlin Syndrome Alliance
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About this service
Gorlin Syndrome Alliance supports individuals with Gorlin syndrome and their caregivers through education, community connection, and research initiatives. The organization focuses on improving treatments and finding a cure for this rare genetic disorder that affects multiple organ systems. Services: Thoughtful support; Comprehensive education; Research for treatments and cure; Community connection; Resource sharing; Natural history study; Patient advocacy summit; UV protective film research survey; Nationwide study on Gorlin syndrome; Plant-derived supplement research.
Who it is for
People with Gorlin syndrome; Caregivers of people with Gorlin syndrome
- Languages:
- English
Where to go
Main
3005 S LAMAR BLVD SUITE D 109 264, Austin, TX, 78704
Travis County
Hours
Hours are not listed. Call before you go.
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Contact
- Phone:
- 267-689-6443
- Website:
- https://gorlinsyndrome.org/
- Email:
- info@gorlinsyndrome.org
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